Prayer for Baylee..
Posted: April 29th, 2008, 8:47 am
Baylee (my 3 year old adopted granddaughter) will be starting her new treatments tomorrow (Wednesday), if nothing happens. She was suppose to start last Friday but the medicines didn't get to the doctors office. Please pray for these experimental treatments to work. For those who do not know, she has something called Opsoclonous-Myoclonus Syndrome (OMS). I know that sounds like a big diagnoses for such a little person so I will give you a little detail about it...
"OMS strikes children who are perfectly normal one day and overnight they start shaking and within two weeks, the child may not be able to walk." Baylee was at this point but now can walk okay, on good days. "OMS is associated with Neuroblastoma cancer (which Baylee had). OMS is an autoimmune disease which starts to fight a tumor. But the body's immune system relentlessly attacks the brain, which gets injured in the cross firing of the immune system as it tries to eradicate the tumor. Unless treatment is given to break off that attack, their will be permanent brain damage. If untreated or not treated properly, behavioral problems begin including attention deficit or obsessive compulsive disorder, rage or temper tantrums, and possibly mental retardation. Treatments for OMS include adrenocorticotrophic homone (ACTH) injections, which have serious side effects including weight gain and high blood pressure. Another treatment is intravenous immunoglobulins (IVIG), which are infusions given over a period of several hours and also Chemotherapy is used to prevent relapses."
Anyway, Baylee will be starting all these treatments on Wednesday (4/30)... She is already one year behind in her development, according to her doctors. I am asking you all to please prayer for her (and her family), even past Wednesday. And also, share this with people you know and your church so they can be praying also.
"OMS strikes children who are perfectly normal one day and overnight they start shaking and within two weeks, the child may not be able to walk." Baylee was at this point but now can walk okay, on good days. "OMS is associated with Neuroblastoma cancer (which Baylee had). OMS is an autoimmune disease which starts to fight a tumor. But the body's immune system relentlessly attacks the brain, which gets injured in the cross firing of the immune system as it tries to eradicate the tumor. Unless treatment is given to break off that attack, their will be permanent brain damage. If untreated or not treated properly, behavioral problems begin including attention deficit or obsessive compulsive disorder, rage or temper tantrums, and possibly mental retardation. Treatments for OMS include adrenocorticotrophic homone (ACTH) injections, which have serious side effects including weight gain and high blood pressure. Another treatment is intravenous immunoglobulins (IVIG), which are infusions given over a period of several hours and also Chemotherapy is used to prevent relapses."
Anyway, Baylee will be starting all these treatments on Wednesday (4/30)... She is already one year behind in her development, according to her doctors. I am asking you all to please prayer for her (and her family), even past Wednesday. And also, share this with people you know and your church so they can be praying also.